Friday, August 30, 2019

Speak to people, listen, gather information


Wednesday the 21st of August.

A quote I came across today, “In summary, proton therapy is just as effective as photon (traditional) radiation therapy, but the question remains as to whether the increased cost of proton therapy is worth the anticipated lessening of side effects.” – breast360.org Radiation Therapy: Photons vs. Protons


Cool day, got to speak with Bob Marckini for 50 minutes. He gave me a few recommendations for questions. Is providing me more research information, and was just great. Sent a list of 150 patients who are willing to talk about their experience.


One suggestion was to make sure I get a second opinion on my pathology, that really determines what direction my treatment should go. If there is a discrepancy in my Pathology, send it to Epstein at Johns Hopkins, he is the expert on Prostate pathology.


That PSA increase velocity can be more important than what the value is.

Ultrasound biopsys is such old technology, there is newer MRI Multiparametric procedure is much more advanced. Helps you better pinpoint where to biopsy before you go in.


Words of wisdom, "Get treated and the best place for you, not what’s most convenient!"

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