Tuesday the 20th I spoke to the nurse of a radiology oncologist at a local hospital, told her I was looking meet the doctor for another opinion, told her that I wanted to do Proton therapy, and she said, we don’t do that here, why would I want to do that, there isn’t any research on that procedure. I asked, what do you do there and she said radiation and surgery, I asked if it was IMRT, and she said yes.
She also asked if I had had an MRI yet, or bone scan on my pelvis, I said no, so I need to get those done, sooner rather than later. Bob’s book does insist that I do that. Anxiety definitely elevated today. As I spoke to her more I talked about the proton facilities I was going to visit, she was surprised there were those facilities, I told her there were 22 around the country, she was surprised, had no idea there were that many. (side note, there are more than 22 and more being built).
My wife and I also attended the end of the Surgery pre op class with some other couples. Listening to post op side affects is interesting. The two ladies were great, we were late, because of me. I swore the seminar started at 4:00, my wife said 3:00. She was right, I was wrong. It will happen again. The two ladies who gave the seminar stayed after and spoke with us, one was somewhat familiar with Proton therapy and seemed to dismiss it a little.
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